CCHF REPORT 2013: Patient Privacy and Public Trust: How Health Surveillance Systems Are Undermining Both
Illinois
Cancer Surveillance System State Statute/Rule IL
STATUTE: 410 ILCS 525/ Illinois Health and Hazardous Substances Registry Act RULES: JCAR Title 77, Ch I Sub Ch p Section 840.110, 840.30
Language Specific to Surveillance System 410 ILCS 525 Sec. 2 …(b) It is the purpose of this Act to establish a unified Statewide project to collect, compile and correlate information on public health and hazardous substances… 410 ILCS 525 Sec. 4(a) ...The University of Illinois School of Public Health shall advise the Department in the design, function and utilization of the Registry. (b) To facilitate the collection of cancer incidence information, the Department, in consultation with the Advisory Board of Cancer Control, shall have the authority to require hospitals, laboratories or other facilities to report incidences of cancer
Data Sharing
Research Authority
410 ILCS 525 Sec. 4 …(e) Hospitals, laboratories, other facilities or physicians shall not be held liable for the release of information or confidential data to the Department in accordance with this Act…
RULE: Every hospital, ambulatory surgical treatment center, clinical laboratory, independent radiation therapy center, independent pathology laboratory, reference pathology laboratory, nursing home, physician's office and other diagnostic or treatment facility shall provide access to information from all medical, pathological, and other pertinent records and logs related to cancer diagnosis and treatment for the purpose of patient record review specified for research studies or for rapid case ascertainment related to cancer prevention and control conducted by the Department…(RULE)
RULE: Every hospital, clinical laboratory, ambulatory surgical treatment center, independent radiation therapy center, independent pathology laboratory, reference pathology laboratory, nursing home, physician's office and other diagnostic or treatment facility shall provide the Department or entities authorized to represent the Department with access to information from all medical, pathological, and other pertinent records and logs related to cancer diagnosis, treatment and
Copyright © Citizens’ Council for Health Freedom June 2013 Updated August 2012. All state statutes and department rules originally accessed online July/Aug 2008. Statute/Rule data not inclusive. For comprehensive or updated language, access complete statute and rules online, at local library or through the state legislature.
Consent Required? NO
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CCHF REPORT 2013: Patient Privacy and Public Trust: How Health Surveillance Systems Are Undermining Both and other specified tumorous and precancerous diseases to the Department, and to require the submission of such other information pertaining to or in connection with such reported cases as the Department deems necessary or appropriate…
follow-up for the purpose of quality control, rapid case ascertainment, patient follow-up and death certificate clearance
410 ILCS 525 Sec. 6 …(a) …The Registry shall consist of the compilation of information in the following categories (i) adverse pregnancy outcomes; (ii) cancer incidences; (iii) occupational diseases; (iv) location, transportation, and exposure to hazardous nuclear materials; (v) company profiles; and (vi) hazardous substances incidents… To the extent feasible, the Registry shall be compatible with other national models of such type so as to facilitate the coordination of information with other data bases. [emphasis added]
Copyright © Citizens’ Council for Health Freedom June 2013 Updated August 2012. All state statutes and department rules originally accessed online July/Aug 2008. Statute/Rule data not inclusive. For comprehensive or updated language, access complete statute and rules online, at local library or through the state legislature.
JCAR 77 - Section 840.30 …(b) Availability of Registry Information: All requests by medical or epidemiologic researchers for confidential Registry data must be submitted in writing to the Department… (d)(1) The Department will enter into research agreements for all approved research requests… (k) Every reporting facility shall provide access to diagnostic, treatment, follow-up and survival information regarding specified patients or other patients specified through rapid case ascertainment for research studies conducted by the Department.
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